Your life, your health : share your health data by Joseph H. Kanter

By Joseph H. Kanter

Guinea pigs--anecdotal drugs -- A street map to the reply -- the overall challenge -- info is the main -- digital clinical files (EMRs) -- sufferer activist -- The Kanter relatives beginning (KFF) -- the longer term possession of your info

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Sample text

We are on the cusp of a new era in medicine and in health, where patients and clinicians are far better empowered to know what works best by continually learning from an ever-expanding collective knowledge base of real-world patient experiences. —Joe Kanter Ideal Solution Imagine yourself in a physician’s office, receiving the results of a diagnostic test and a corresponding diagnosis. Although your diagnosed condition is serious, your doctor tells you it is treatable and that there are several treatment options.

Sir Winston Churchill I wish to sincerely thank all the people listed in this book—as well as those not listed—who have made information available in order to assist me in my writing. You know who you are! I also wish to extend my gratitude to the dedicated staff of the Joseph H. Kanter Family Foundation (KFF), as well as our many consultants and pro bono volunteers. In particular, I wish to thank Joshua C. Rubin, JD, MBA, MPH, MPP, KFF’s Executive Director; and Richard Tannen, MD, KFF’s Director of Medical Research.

All the doctors recommended surgery. It seemed that the snipping of several inches of intestine and the risk a colon infection or peritonitis to resolve a stomachache had become a fad among doctors. I kept asking questions. It turned out the fatality rate from the surgery was as high as 6 percent, higher than for a heart bypass. It seemed not only foolish to undergo this procedure but downright stupid. This notion was incomprehensible to me. We live in the most technologically advanced civilization the world has ever known, built by businesspeople of all stripes who painstakingly deconstructed and analyzed the markets in order to better serve them.

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